A Journey in Review, Post 36: Sudden Changes
The disease chips away at the pieces of your person so.very.slowly, but when a piece breaks off, it’s heart-numbing and sudden.
The disease chips away at the pieces of your person so.very.slowly, but when a piece breaks off, it’s heart-numbing and sudden.
Alzheimer’s is a cruel prolonging of letting go. Months, years, mostly slow until it’s not. Knife twist: letting go feels like giving up.
They won’t make good decisions, they won’t remember what to do. They require love and patience.
The palliative team that came aboard with us eventually evolved into a hospice care team. We didn’t like needing it, but it was time. It was the right scary decision.
Mom loved to find things to do, not only for me, but for anyone in her family or community. Losing the ability to do things for others was devastating for her. Alzheimer’s is a wicked thief. The disease stole her sense of purpose, belonging, and community.
You know what else lives on? The flowers we planted together eighteen months ago. When I see them now, I have clear visuals of her jumping right in to be present with us, whether that meant putting on the garden gloves to dig in the soil or stripping them off, along with her hat and ear protection, to be fully present.
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